For Patients/Public
- The ME/CFS Crash Survival Guide is designed for the patient, their support network, and care team to:
- Understand ME/CFS and its defining characteristic of post-exertional malaise (PEM).
- Help the individual prepare in advance for a crash/PEM episode, ensuring their critical needs are met.
- Offer adaptive guidance for carrying out everyday living activities that support energy conservation with ME/CFS.
- Pacing Guides for activity management.
- Pacing Guides for activity management for adults.
- Pacing Guide for activity management for children.
Support Groups
Disability and Accommodations
Job Accommodations Network
- Long COVID Accommodations (JAN)
- ME/CFS Accommodations (JAN)
- Long COVID at Work: A Manager’s Guide (Harvard Business Review)
For Clinicians
Assessment & Management
- Mayo Clinic Proceedings: Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
- US ME/CFS Clinician Coalition
- Pacing Management Guide developed with the Patient-Led Research Collaborative (PDF)
Continuing Medical Education
- CME on infection associated chronic conditions (with credit) (PDF)
- Mayo Clinic Proceedings Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (October 1, 2023) | Mayo Clinic School of Continuous Professional Development
- Long COVID & Post-Viral Syndromes ECHO
- University of Utah Health & Bateman Horne Center series connecting healthcare professionals and highlighting assessment and management strategies for Long COVID (PASC), ME/CFS, and related comorbidities. This page serves as a repository for these lectures, with a third series launching in October.
- Long COVID & Fatiguing Illness Recovery Program ECHO
- Another great lecture series for healthcare professionals.